Finding light after darkness.

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The bottle sprung open, and the little orange pills inside of them flew across my desk and the floor. I tried to scoop up the ones that had survived the explosion and put them back in the bottle, knowing that they made the difference between a day of uncontrollable anxiety and a day of not feeling. And as the former kept becoming unbearable, I frequently found myself opting for the latter. Finally, I forced myself out of my room—my face unwashed, feeling a bit gross, but at least the outside of me matched what I was feeling inside. But as I walked outside, I heard the chirping of birds filling the silence and I knew things would be okay eventually. I made my way to the same place I’ve kept finding myself over the past week: in front of this large, red fountain outside of the library. The water falls from above, creating a circular wall and a crashing sound.

Here, many people congregate, often sitting alone, spending quiet time in front of it: resting, writing, talking, sunbathing. Even as I sat here writing this, a young woman approached the fountain, sat down on the steps in front of it, and lost herself in quiet reflection, watching the water fall. Passing behind the fountain are students, professors, and university staff and workers, making their way between the library, the café outside, and Main Quad nearby. It’s one of the few places on this campus where I can find solitude and mental clarity without actually having to be alone.

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The altar in Stanford’s Memorial Church during weekly University Public Worship

I’ve been finding that same sense of solitude in the weekly church service, University Public Worship, that I’ve been trying to go to most Sundays. A Protestant ecumenical service in our gorgeous Memorial Church, its services resemble the structure of a Catholic Mass. But unlike the Catholic Church, outdated practices—like the refusal to ordain women as priests—are thrown out the window. Each week, I walk in proudly with the rainbow watch band that I’ve started wearing again, and I can finally feel accepted. The people in the room range from all sorts of Christian and non-Christian traditions, and surprisingly, years and years ago, when a census on the congregation was done, a very large number of regular attendees considered themselves atheists or agnostics, even as the various ministers come from Anglican, Episcopal, Methodist, and other Christian traditions. This congregation is fairly private—I don’t know anyone’s names, and they don’t know me—creating a certain sense of anonymity that has been oddly comforting. It’s a similar vibe as sitting in front of the red fountain, a place I can be in solitude without having to truly be alone.

Re-enchantment amidst a Disenchanted World

Holy Wisdom gathers us together with tenderness and care.
With gentleness, She calls us into the dwelling place of God.

Our pain, our fears, and all our unmet longings—they are safe in Her embrace.
In the company of God, we tend honestly to the state of our souls.

In the depths of our being, She dwells with Her healing love.
In due time, God mends the broken heart.

The Beloved One says, “Come.”
Let all who long for restoration bring every ache and ill.

Last spring, I shared that I stopped believing in God after my brother’s cancer relapsed for the second time:

The day after [my brother relapsed], my pastoral tutor told me that it sounded as if I had died many times over, that death seemed cyclical to me. For the last nine years of my life, I feel as though I’ve been brutally murdered and then resurrected, only to be killed yet again. None of this feels like it has come out of nowhere; for the week before, I was constantly on the verge of a nervous breakdown with absolutely no idea why. I had been having such horrific nightmares that I couldn’t sleep. I looked so exhausted and weary that other people began telling me that they were worried about me. I even considered going back on antidepressants after months of not needing them. And then I got the news, and it suddenly felt like it all made sense.

It’s been a month since I stopped believing in God. It’s been a whole month and I haven’t been able to find meaning in any of this. If you go back and read any of my previous posts, my outlook has always been, at its core, a spiritual one of hope, one that finds meaning in everything. Today marks yet another day I can’t find that.

Since then, I’ve managed to find meaning again. My brief stint with an “atheism of pain” could not be described in the same ways as the atheism of many of my friends and peers, those who, through rationality and logic, have come to the conclusion that there simply cannot be a God. Instead, my temporary atheism could best be described as a frustration with the random chaos of the world, a desire to believe in something more than the pain that I’m experiencing that I simply couldn’t feel connected to at the time. Meanwhile, I’ve always been a spiritual person, having grown up in the Catholic Church, educated by the Jesuits, and carrying the principles of Catholic social teaching—human dignity, solidarity, charity, distributism, and social justice—with me even as the Catholic Church more or less left me.

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The entrance to Main Quad

German sociologist Max Weber once described this decline in religiosity as “disenchantment.” With the rise of Western science, monotheistic religions were cast aside as irrational, and in this disenchanted world, bureaucratic, secularized Western society reigns supreme. As Weber famously wrote, modernity is characterized by the “progressive disenchantment of the world.” But this isn’t a prescription for the future: Weber’s disenchantment thesis is best understood as a dialectical relationship between disenchantment and re-enchantment, a cyclical process of becoming disenchanted and then finding re-enchantment. The slow death of God, to Weber, has culminated in the return of gods and demons who “strive to gain power over our lives and again … resume their eternal struggle with one another.”

This dialectical relationship between disenchantment and re-enchantment has played out on a personal level in my life, and after, as my pastoral tutor told me, “I had died many times over, that death seemed cyclical to me,” I’ve begun seeing my life become re-enchanted again. While most Christians probably wouldn’t consider me Christian—the belief in Jesus Christ as the Son of God who died and rose again for our sins is probably a non-negotiable that I cannot say I’ve honestly believed since about the age of 15—I’ve still found myself to clinging to “spirituality” in the broadest sense, without forcing myself to really have to believe in anything too dogmatically. I’ve found myself in church on Sundays. I find myself looking up at the stars on many nights, tracking their movements like the astrologers of old. I find myself sitting quietly, allowing my breath to match the breath of the Universe. I find myself returning to the cultural traditions I grew up, such as not eating meat on Fridays during Lent even if I no longer fear hellfire for not doing so.

In some ways, really immersing myself in my academics has been a curse. I take a lot of comfort in intellectualization, and it’s the way I come to terms with the mysteries of human understanding. The social world around us, as confusing as it is, is something I believe can be explained with the right tools and methodology, and that’s what has kept me in love with social anthropology (my major) as a discipline. But at the same time, it can be exhausting to constantly peer under the surface of every social interaction and phenomena. And when it comes to things as personal as spirituality, I usually leave the question of “what does this mean” for when I eventually have an existential crisis about how to reconcile my academic life with what I should or should not personally believe. But lately, I’ve found myself feeling more at peace with the inherent contradictions that come with this: I may understand re-enchantment as the social phenomenon it is while also finding myself needing to re-enchant the world in which I live in, even if my actual belief in these things is shallow and not deep. You may wonder what I actually believe. The answer? I believe in both everything and nothing.

Astrology, of which observance has been steadily rising in my generation, is something I find myself turning to more and more—not necessarily as a tool for divination, but as an intellectual exercise that helps me ascribe greater meaning to the celestial bodies in the sky. At the same time, I’m constantly thinking about how astrological belief itself is a unique case study, whose irrationality and lack of scientific basis challenges our notions of the modern and the idea that we have somehow reached modernity. And this isn’t unique to astrology: I’d even argue that the growth of Marxist thought and the rise of democratic socialism in American politics, of which I am an active participant given my unabashed socialist views, should really be understood less as a return of a political ideology and more as a new system of belief that has the possibility to create a sense of re-enchantment in our disenchanted society. (See the tension?)

Casting out the darkness

“He who does not know how to look back at where he came from will never get to his destination.” — Dr. Jose Rizal, Filipino scholar, revolutionary, and national hero of the Filipino people

By this point, it would be reasonable to ask, “What exactly is the darkness that you’ve been trying to find light within?” If you had asked me many months ago, my answer would have been one word: cancer. But now, with my brother being cured of his cancer thanks to the development of CAR T-cell therapy, I can’t simply pin the darkness I’ve been wandering through on a biological disease, as if chemotherapy, bone marrow transplants, or immunotherapy will be the be-all and end-all. What’s often ignored in discussions about cancer is the emotional and psychological pain that comes with it. Even though everything should be getting easier, in some ways I’ve felt like things have been getting harder. I find myself reaching for my anti-anxiety medications more frequently than before. I’ve told the story of my brother’s cancer more times than I can remember to the point where it’s become rehearsed. But it was only when, while having a long conversation with a friend in my room, that when I tried telling the story of his most recent relapse again, I burst into tears—something I don’t do very often.

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Green Library at Stanford University

When I told a friend today that I think I just needed another day off, despite all the academic obligations I have, she told me, “Think of it this way: you’ve had multiple weeks of craziness. Of course you need a day or two.” The truth is, it’s been a crazy past few weeks, a crazy past few months, even a crazy past decade that started in August 2010 when my brother was first diagnosed with cancer and my relationship to the world around me changed forever in irreparable ways. Maybe this is one of the marks that I’ve finally become comfortable in my academic career—now in my senior year at Stanford, I’m not afraid to advocate for myself and all that I need to thrive.

From the clinical depression and anxiety I was diagnosed with sometime between my brother’s second and third bout with cancer, to what I can only describe as Complex PTSD, a form of post-traumatic stress disorder that comes as a response to chronic traumatization over the course of months or years, especially in childhood, these are all just some of the many battles that life has thrown at me at such a young age. Considering that 1 in 4 women newly diagnosed with breast cancer experience PTSD, the constant traumatization and re-traumatization of watching your younger brother be diagnosed with cancer and then relapse and relapse again since 2010, and even having to donate my own bone marrow at the age of 12 for what ended up becoming an unsuccessful bone marrow transplant, seems to have left an indelible mark on my psyche.

It can be frustrating that the “political capital” I’ve built up by being an active participant and critical thinker in my classes must be spent on what can only be described as time needed to manage my disability, a term I chose to intentionally embrace as it gives a medicalized understanding to those who may not understand how debilitating depression, anxiety, and PTSD can be on someone already as emotionally fragile I am. But at the same time, I am proud of the way that I’ve learned to put myself first, and I’m grateful for the kindness and understanding of my instructors who, throughout my college career, have told me to unabashedly protect my health. Because without taking the time to look back on how my past affects me, healing can never come.

When I’m stuck in these ruts, the ones where I feel petrified and lost whose frequency has been increasing, I think back to the words of Dr. Jose Rizal: “He who does not know how to look back at where he came from will never get to his destination.” These past few days, I’ve spent a lot of time looking back at where I’ve come from. And thanks to the help and kindness of those close to me, many have been there to help show me how I’ve turned trauma into something beautiful—how I give my love to so many; how, even if I struggle to connect with my own emotions, I can be so emotionally in tune with others; how the radical honesty and authenticity I’ve been working towards adopting has helped my friends who are underclassmen feel the space and agency to also advocate for their needs.

Tomorrow, I am excited to wake up with the sunrise and head back to the red fountain outside the library with my morning cappuccino in hand, where I can read and write in peace. And then I’ll go to my anthropology class, refreshed and ready to grapple with ideas around asylum and prisons. After, I’ll finally chip away at all the schoolwork that I’ve abandoned during this needed period of introspection. And in the evening, I’m excited to eat teriyaki salmon with a friend I haven’t seen in so long, then go to a fraternity (yes, a frat) with a different friend for their study night with unlimited espresso beverages (much needed), study spaces, and an open mic night (you can tell I go to Stanford!). I look forward to the future, including to the next quarter, when I’ll be stepping outside of my comfort zone and taking a video & film production class where I’ll be producing a documentary: hopefully on pain at Stanford, since there really is so much unique potential for a juxtaposition between stories of suffering here and visual images of palm trees, sunshine, and sunbathing students.

But today, as I continue grappling with it all, I give myself the time and space to rest.

The Spirit sends us from this place with power:
to disrupt cycles of violence,
to practice healing within and around,
and to create bold alternatives to norms that harm and destroy.
With this knowledge and assurance,
may we go and make it so.

With love and power,
Josh

Cancer, take three.

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It’s been a month since I found out that my brother’s cancer relapsed for the second time. This now marks nine years of cancer haunting our lives. That’s nearly half of my life and the majority of my brother’s life.

I’ve considered writing about it on here for a long time, but I just couldn’t put my thoughts into words. So I decided to simply push it away. But after what became a sudden, intense emotional breakdown at 2am last night, I decided that I had to somehow return to what has always been a form of therapeutic, cathartic release for me: writing about it publicly.

When I first started this blog at the age of thirteen, cancer was one of the first handful of topics I wanted to write about. At the time, it was a fairly simple, easily wrapped-up story: my brother was diagnosed with leukemia in his first week of kindergarten, it got worse over the coming months to the point where he needed a bone marrow transplant, and I was his donor. The procedure happened two days before Christmas, he eventually got better after many post-transplant roadblocks, and cancer advocacy became a piece of my family’s life.

Five years later, when my brother’s cancer came back, I wrote a blog post the day that I found out. It was short. It was raw. It was everything that an almost-seventeen-year-old me needed to scream out into the world. And then by this January, I was able to write about meeting my brother’s marrow donor in Berlin while I was traveling before my two terms studying abroad at Oxford. This time around, about four years later, I’ve replaced screaming on my blog with screaming in real life. The day I found out, I spent the entire day loudly weeping. The walls in my house are incredibly thin, so the sounds of me crying hysterically carried from floor to floor in the house. For the first time in a long time, I had been bracing myself for death. At the time, it seemed hopeless—I was told that my brother was probably going to die within the year, and there was likely nothing that could be done. I spent the entire night in grief. I didn’t want to be alive anymore. I didn’t want to literally die, but I did feel like I was already dead.

***

The day after, my pastoral tutor told me that it sounded as if I had died many times over, that death seemed cyclical to me. For the last nine years of my life, I feel as though I’ve been brutally murdered and then resurrected, only to be killed yet again. None of this feels like it has come out of nowhere; for the week before, I was constantly on the verge of a nervous breakdown with absolutely no idea why. I had been having such horrific nightmares that I couldn’t sleep. I looked so exhausted and weary that other people began telling me that they were worried about me. I even considered going back on antidepressants after months of not needing them. And then I got the news, and it suddenly felt like it all made sense.

It’s been a month since I stopped believing in God. It’s been a whole month and I haven’t been able to find meaning in any of this. If you go back and read any of my previous posts, my outlook has always been, at its core, a spiritual one of hope, one that finds meaning in everything. Today marks yet another day I can’t find that. Even upon re-reading the previous posts about cancer that I made, I find it so difficult to reconcile the cruelty of chance—in particular, that my brother’s first relapse four years ago would come at the conclusion of a local radio special about my brother that ended with a segment on his life post-cancer—with any sort of grander meaning in the world.

It’s been a month since I’ve craved escape and have done everything I possibly can to do that. I disappeared for a few days to northern France, to Spain, to other parts of England. I considered hopping on a train and taking it as far away as it would take me. For a moment, I had considered not going back to London from France, and instead trying to get a train to Berlin, and that I would call my brother’s second marrow donor, tell her I desperately needed to be away and that I just needed a day to cry—but in Germany instead of in England. Then I decided against it.

***

In the twenty-four hours after my brother’s relapse, all of us were forced to deal with incredibly difficult decisions. There were two options presented to us: we could look for a possible experimental trial or we could try to extend his life for about a year and try to give him a year doing and seeing all that he wanted. Hours after finding this out, some of my Oxford friends had come over with ice cream and snacks to comfort me, and I told them privately that I didn’t know whether I could ever continue on—I didn’t have the energy to exhaust every last option but watch my brother in pain in a hospital room, and I didn’t have the emotional capacity to consider a life where I suddenly no longer had my brother. The deliberations didn’t have to be resolved then; we found out a more conventional treatment option might be available, and on June 10 we will find out whether or not he’s a candidate for it.

Just a week ago, I woke up to a blog post my mom had written entitled, “If I knew what I know now.” It centers around the question that my brother asked my mom while he was getting his chemo: “Mom, would you have had me if you knew I was going to have cancer?” Her answer was a resigned and difficult no. There was a certain level of guilt that came with it—after all, how couldn’t there be? And that to me has been just another piece of what has been so hard about this entire experience: the guilt.

I want to live a normal life. I want to be happy. And I hate that I’m filled with so much guilt throughout this whole time—for having been away from my family for this whole experience, for wanting to escape, for actually being able to escape while the rest of my family can’t, for everything.

***

Being the brother of a cancer patient has always come with its own unique set of challenges. Siblings are often forgotten in the experience, and it can leave long-lasting emotional scars. In my case, I think it wouldn’t be all that shocking for anyone to know that going through these experiences—first at twelve, then at seventeen, and now again at almost twenty-one—has certainly left indelible, traumatic marks on who I am. Years and years of therapy have tried to help me undo some of the most negative pieces of it: an abandonment complex, clinical depression, and anxiety. And now, just as some of those things were beginning to be worked through, it’s incredibly scary to have the wound reopened for yet another time.

I had thought that I could hold out and be strong, that maybe a few added years of life experiences and emotional maturity would make everything less painful than the previous times. But each distinctive cancer experience has taken from me in ways that I know I will never get back, and I can already feel the ways in which this journey has started to take from me.

I remember how, in my freshman year of Stanford, I had switched into a class called “The Cancer Problem” to fill a general education requirement. I had thought that a few years of distance and a certain level of stability within my family would make it easier to get through the class. But what actually happened was that I found myself emotional and hot-headed each time I got into the class, often choking back tears while arguing with my classmates, who were unaware of my family situation. Each class felt like navigating a battlefield, and half the battle was trying to not let on that I was suffering the whole time.

If anger characterized my processing for last time, grief seems to characterize my current experience this time. It’s been difficult to sleep or to fully enjoy my experiences, and quite frequently I found myself hit with random waves of hopelessness and the desire to just burst into tears. So instead, I’ve tried to keep myself as distracted as possible, running myself into the ground because then I’d be too exhausted to think much more about this. Someone once told me that Freud apparently had a list of different ways to handle grief—from avoidance to diving in head first, from deliberately changing your mental state through substances to intellectualizing the experience to give distance, from choosing to exist within an altered reality to pouring yourself into the world as it exists now. It seems that I’ve picked various forms of avoidance as a way to lessen the grief.

But that calculation seems to have been an incorrect one. Instead, it seems that, when I do feel the weight of it all, it feels like I’m being by a truck, compounding with all the other stresses of handling racism, homophobia, anxiety, academic stresses, interpersonal problems, and just general fears that come with being in your early twenties. And now the weight of cancer yet again finds its way back.

***

I wish that I had a better way to end this post. I wish that I could end on a much cheerier note, that I would somehow be able to inspire the people who read this to go and do something or say something or change the way think about something. But I can’t. Instead, I return to what I wrote on April 9, 2015, the day my brother relapsed the first time:

“I don’t know how I’ll get through this” has been my anthem today. And as I write this, I still have absolutely no idea how I’ll be able to cope.

Today, I feel the same way as I did four years ago. But somehow, I did get through it last time. And I got through it the time before that. I’ll get through it this time because I always do. The bigger question is just which piece of me I’ll lose in the process.

A Marrow Match in Berlin

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On November 9, 1989, the Berlin Wall fell. People who lived within East Berlin were now free to enter and live in West Berlin. One of those people who found freedom of movement was Yvonne, who grew up in East Berlin with the Berlin Wall across the street from her garden. Her now-husband had previously attempted to escape into West Berlin just the year prior, leading to a nine-month jail sentence.

On November 9, 2014, on the twenty-fifth anniversary of the fall of the Berlin Wall, Yvonne went to a marrow registration event hosted by DKMS at the site of the Berlin Wall. A child in Potsdam, a city on the border of Berlin, had needed a marrow donation, and she—along with over a thousand other people, maybe more—joined the marrow registry in order to see if she’d be match. She was not, but she and three others who registered that day ultimately became marrow donors.

The child in Potsdam ultimately found a match. And so did someone over an ocean away: my brother, Jude.

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I’ve written on here about my brother’s and my family’s journey with cancer. In August 2010, at the age of five, he was first diagnosed with leukemia. By December 23, 2010, I became his marrow donor, when I was only 12 years old. You can read about that first bout with cancer here. About five years later, in April 2015, my brother’s cancer came back. I wasn’t able to be his marrow donor again this time, and we had to search the national marrow registry.

There was a major problem: my brother and I are both mixed-race, Filipino and white. Marrow matches, unlike blood types, are much more specific, based on your tissue type (specifically your human leukocyte antigens, or HLA type). These are genetically passed down, making it much more likely for you to match with someone of the same ethnic background as you—although not always. However, the national marrow registry in the United States is mostly white, making it much harder for people of color and especially mixed-race people to find matches. According to Be The Match, the National Marrow Donor Program, the likelihood for a white person to find a match is 77%, but for black people, the likelihood is only 23%, making it even more urgent for people of color to join the marrow registry.

Miraculously, Yvonne, a German woman from East Germany, was my brother’s match. 

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When she found out that she was a match for an American child, she headed to Cologne (Köln) because marrow donation specialists were there and not in Berlin. (As I write this post, I am currently on a train from Berlin to Cologne—a roughly five-hour journey.) She needed to spend two days there—one for a physical exam and the next for the donation itself—but because Gamescom was happening during the week of her marrow donation, she couldn’t find a single hotel with an open room. She and the friend who accompanied her spent the night in her car, knowing how incredibly important this life-saving procedure would be.

On September 1, 2015, Yvonne donated her marrow. There are two ways to donate: one is a non-surgical procedure much more similar to donating blood, in which peripheral blood stem cells are filtered out of the donor’s blood and the rest of the blood is returned. The second is through an outpatient surgical procedure in which marrow is extracted out of the hip bone. Both Yvonne and I went through the second procedure, which as I understand it is common for when the patient is a child.

On September 2, 2015, the marrow made it to Dallas, Texas, and my brother received his second marrow donation.

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“Many small people who in many small places do many small things that can alter the face of the world.”

Much has happened in between September 2, 2015, and today. What’s often forgotten in stories about cancer is that the marrow donation is not the end of the story; rather, the marrow donation is usually the key to having the chance to fight another day. Between liver complications, graft vs. host disease, and other complications both common and uncommon for post-transplant cancer patients to experience, it was certainly no guarantee that we would get to the position we are in today, where the sky isn’t completely clear but the darkest clouds have certainly parted.

On December 30, 2018, as part of my travels through Europe, I had the opportunity to meet Yvonne and her family. Together, we did a walking tour of the city of Berlin, seeing so many of the major historical sites that make Berlin such an interesting city. With Yvonne, I tried currywurst—my new favorite German comfort food!—and schnitzel for the first time. And at the end of the long, four-hour walking tour, we took a break from the cold to have glühwein—this time a non-alcoholic version: warm blackcurrant juice so that the friend I’m traveling with (who doesn’t drink) and their under-16 year old son could join in.

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Currywurst

Here, holding our cups of glühwein to keep ourselves warm, Yvonne told me the story of her marrow donation. As she told me, when there was a child in need that she could help, she believed she had an obligation to do so. And thank God she did, because if she didn’t, my brother would have likely never found a marrow match. So much of this story was, to me, a miracle. The odds of him finding a match were already not ideal, but Yvonne turned out to be a perfect match—ten out of ten of her HLA markers matched Jude’s. The fall of the Berlin Wall set up the conditions for my brother to find his marrow match, first allowing Yvonne and her husband to enter West Berlin and then bringing her to join the marrow registry a full twenty-five years later.

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Now, in Berlin, I have family: my brother and Yvonne very literally have the same blood. The city has since become my favorite in Europe, partially because Berlin on its own is an incredibly unique and exciting city, but also because I will have such fond feelings for the city that gave my brother yet another chance at life.

~~~

As I close out this blog post, I want to end with how you too can make a difference. If you are between the ages of 18 and 44 and in the United States, you can join the marrow registry through Be The Match. If you are outside the United States, other organizations like DKMS operate in Germany, Poland, the United Kingdom, and Chile (as well as the United States). If you are in a different country, you can still join the marrow registry through other organizations. It does not matter through which organization you join the marrow registry, whether Be The Match or DKMS—joining the registry with any organization will make you available to people who need marrow transplants from all over the world.

Additionally, if you are in the Dallas–Fort Worth area, Children’s Health, where my brother was treated and I volunteered & interned for years in high school, hosts their annual marrow drive every February 14, Valentine’s Day.

Lastly, I wanted to share my friend Brooke’s Hero Fund through St. Baldrick’s, a charity that funds research on childhood cancer. Brooke is a Stanford student set to graduate from Stanford at the end of this school year after being diagnosed with cancer in the middle of her college career. Today, she has been accepted to medical school, and her hero fund aims to support research in young adult survivorship and graft vs. host disease; as I mentioned before, marrow transplants and cancer itself aren’t the end of the story, and very few resources have been invested in improving the quality of life for children and young adults who may be experiencing chronic medical issues after their cancer experiences. I asked for donations to her hero fund for my twentieth birthday, and today, to celebrate 2019, I encourage you to do so again.

It’s cancer. Again.

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This is my brother, Jude. He’s ten years old. And in December 2010, he had a bone marrow transplant that saved his life.

Today, I found out that his cancer has returned.

I’m just completely and utterly shocked, and never in a million years would I have expected this. I still secretly don’t believe this is happening, and I really think this could be just a really bad dream or an elaborate April Fool’s joke everyone is in on except for me. But the waves of guilt and anxiety and fear and anger have been crashing down on me, and no matter who I tell or how many times I tell people, I just can’t get these feelings to go away.

“It’s not your fault,” I was told by every single person I talked to today. “It’s not your fault.” It’s not your fault. It’s not your fault. It’s not your fault. The words sear into my head with the intensity and pain of a hot branding iron.

With each repetition of this phrase, I don’t feel any better. It’s not your fault. It’s not your fault that Jude relapsed. It’s not your fault that your bone marrow didn’t work. And it’s not your fault that he’s going through this again. My mind becomes numb as I hear this phrase repeated over and over and over and over. It’s not your fault. It’s not your fault. It’s not your fault.

But no matter how many times people tell me it’s not my fault, that I shouldn’t feel guilty for my brother getting cancer a second time, the feelings of guilt don’t go away. I feel guilty for every time he came in my room and asked me if I wanted to do something. I feel guilty for every time he asked if I wanted to watch a movie with him. And I feel guilty for every time he asked me if I would watch him play video games. If I could go back in time, I would’ve stopped whatever I was doing to just be with him, before he was in pain, before it became too difficult for him to smile.

KERA, Dallas’ NPR affiliate, did a feature on my brother’s cancer story and recovery that ended just last week about how we’ve moved on from the cancer experience and what we’ve taken with us. When I was asked whether or not I worry about Jude’s health, I answered with a resounding “No.” I don’t worry because Jude’s health will be fine. Yet, I was proven wrong in the worst way possible. The “He’s been cured” line I told everyone back then is now a lie.

“I don’t know how I’ll get through this” has been my anthem today. And as I write this, I still have absolutely no idea how I’ll be able to cope. All I want is a sense of normality. “Normal” is the result I’m searching for but one I know is impossible to achieve. Because “normal” means my parents come home, my brother goes back to playing on the laptop at his desk, I go back to worrying about my physics class, and my brother doesn’t have cancer again.

When I was told that Jude’s leukemia returned, a few thoughts rushed into my mind. How will I ever get through this again? It was a fairly typical response, a textbook reaction of someone in my situation. But what surprises me is what my next immediate thoughts were. Will I have to email my teachers and ask for extensions on tests and homework? What does this mean for my extracurriculars? Am I still allowed to be as involved at my school as I currently am? Has everything I’ve been working towards for the last three years just been thrown out the window for something that’s “not my fault”? It feels incredibly selfish to wonder about what happens to me first, and maybe it’s not what everyone expects—or wants—me to worry about, but that’s all I can think of. And I just can’t even fathom how much longer my brother will be a cancer patient, what that will mean, and whether we’ll both make it out of this mess.

At this point, what I really want is to clear to me, and there are only a few things that I really want right now. I really want a strawberry-banana smoothie that’s thick, but still thin enough I can drink it through a straw. I really want to go to the library and check out a book on sociology that I’ve kept on hold for the past few days. I really want to reach a conclusion on whether or not I’m taking psychology next year and which class I’d have to give up to take it. And I really want to wake up.

Food and Fashion: Saint Valentine’s Day Luncheon and Fashion Show

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On Tuesday, February 12, 2013, I had the privilege of attending the Leukemia & Lymphoma Society’s annual Saint Valentine’s Day Luncheon and Fashion Show. How was it? Completely amazing.

As I mentioned earlier, I was selected for the Spirit of Tom Landry Character Award—a great honor that I’m so grateful to receive! The luncheon and fashion show were such amazing experiences, and I even got to bring along one of my first childhood friends, Alessia. (I thought she’d enjoy the fashion show much more than any other one of my friends, too.)

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We got out of our car in the pouring rain, something I assumed was “good luck” for the events to come. Running into the Meyerson Symphony Center in the Dallas Arts District, I knew it would be an exciting day. I was surrounded by tables covered in the classic Valentine’s Day red and pink, with little gift bags—and pledge cards with my face on them!—on the tables. (The fun part about the picture was that I took it on my camera while I was in San Francisco!)

The Tables Continue reading

Cancer, Hope, and Miracles: One Moment Changed Everything

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This is my brother Jude, and it’s a miracle he’s here today.

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My brother, Jude, was a sickly child, constantly being taken out of school for medical reasons — what we believed was asthma. Jude going to kindergarten was such a huge moment — the two of us would be at the same school, he’d actually be going to school, and I’d be able to see him there every day.

Seventh grade was the first year I tried to stay extremely optimistic for the future. I started writing in a journal I bought, making sure to include even the mundane details of the first days of school. As I was rereading it, something caught my eye — Jude had a stomachache one morning, and we were almost late to school.

It was August 19, 2010, Jude’s fourth day of kindergarten and my fourth day of seventh grade. He cried for so long that day about losing a game in his gym class. He screamed about how they cheated him and how unfair the game was, as we told him that “it was just a game” and that it wasn’t worth crying over.

His cheeks were bright red, which I thought was my mom’s lipstick. Later that night, we found out he had a 105 degree fever, and we brought him to the emergency room. I’ll never forget the flashing lights of the ambulance that whisked my only brother away from the emergency room to the large hospital, Children’s Medical Center, in downtown Dallas.

The next morning, my friend A-’s dad brought me to the hospital to see Jude. I kept my sunglasses on for the ride home, trying to hide the tears.

When I made it home, I started packing up my things to take with me back to my friend’s house. My journal was exactly where I left it. I opened it, turned it to the next blank page, and wrote three words.

“Jude has leukemia.” Continue reading